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Life Transition of Mothers of Children with Autism

자폐성장애 아동 어머니의 삶의 전환 과정

  • Lee, Ae-Ran (Department of Nursing, Wonkwang Health Science College) ;
  • Hong, Sun-Woo (Department of Nursing, Kangwon National University) ;
  • Kim, Ji-Soo (Department of Nursing, Gachon University of Medicine and Science) ;
  • Ju, Se-Jin (Department of Nursing, Namseoul University)
  • Received : 2010.08.06
  • Accepted : 2010.12.28
  • Published : 2010.12.31

Abstract

Purpose: While there are a number of studies on children with disabilities, there have been few studies on mothers of children with autism. The purpose of this study was to explore the process of life transition of mothers who have children with autism. Methods: From June 2007 to May 2009, the researcher interviewed 15 mothers of children with autism living in Seoul City, Gyeonggi or Chonbuk Provinces, and then analyzed the data gathered using the constant comparative method of grounded theory. Results: "Living together holding a string of fate" was a core category showing along the continuum of life. The basic social process of life transition encompassed 5 stages: stages of denying, wandering, devoting, mind controlling, and finally accepting. These five stages proceeded in phases, though returned back to the wandering stage occasionally. Conclusion: This study has opened the door to understanding how mothers of children with autism experienced life transition. The findings suggest that differentiated support and care at each stage should be given and there is the need to develop transition assessment tools for mothers of children with autism.

Keywords

References

  1. Corbin, J., & Strauss, A. (2008). Basics of qualitative research (3rd ed.). Thousand Oaks, CA: Sage Publications.
  2. Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9, 416-427. https://doi.org/10.1177/1362361305056081
  3. Glidden, L. M., Billings, F. J., & Jobe, B. M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50, 949-962. https://doi.org/10.1111/j.1365-2788.2006.00929.x
  4. Green, S. E. (2007). "We're tired, not sad": Benefits and burdens of mothering a child with disability. Social Science & Medicine, 64, 150-163. https://doi.org/10.1016/j.socscimed.2006.08.025
  5. Hassall, R., Rose, J., & McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research, 49, 405-418. https://doi.org/10.1111/j.1365-2788.2005.00673.x
  6. Im, S. B. (1997). Effects of a mother-child attachment promotion program for children with pervasive developmental disorder. Unpublished doctoral dissertation, Seoul National University, Seoul.
  7. Johnson, B. S. (2000). Mothers' perceptions of parenting children with disabilities. The American Journal of Maternal Child Nursing, 25, 127-132. https://doi.org/10.1097/00005721-200005000-00005
  8. Korean Statistical Information Service. (2009, June). Registered disabled persons data. Retrieved July 17, 2010, from http://kosis.kr/nsportal/themes/themes_03List.jsp
  9. King, G. A., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P., & Bate, A. (2006). A qualitative investigation of changes in the belief system of families of children with autism or Down syndrome. Child: Care, Health &Development, 32, 353-369. https://doi.org/10.1111/j.1365-2214.2006.00571.x
  10. Landsman, G. (2003). Emplotting children's lives: Developmental delay vs. disability. Social Science &Medicine, 56, 1947-1960. https://doi.org/10.1016/S0277-9536(02)00215-0
  11. Lee, A. R. (2009). A structural model of caring behavior of mothers of disabled children. Journal of Korean Academy of Nursing, 39, 613-622. https://doi.org/10.4040/jkan.2009.39.5.613
  12. Lee, K. H. (1994). An analysis on the pathway between family stress and adaptation in families with mentally handicapped children. Journal of Korean Academy of Nursing, 24, 666-677.
  13. Lee. M. H., Choi, K. C., Lee, W. R., Kim, M. K., & Choi, S. A. (2004). The emotional problems of family having children with disabilities in daily life. Journal of Special Education & Rehabilitation Science, 43(1), 137-158.
  14. Lim, Y. S. (2004). The lived experience of mothers who have children with pervasive developmental disorders. Unpublished master thesis, Seoul National University, Seoul.
  15. McKeever, P., & Miller, K-L. (2004). Mothering children who have disabilities: A Bourdieusian interpretation of maternal practices. Social Science &Medicine, 59, 1177-1191. https://doi.org/10.1016/j.socscimed.2003.12.023
  16. Meleis, A. I., Sawyer, L. M., Im, E. O., Hilfinger, M., DeAnne, K., & Schumacher, K. (2000). Experiencing transitions: An emerging middle-range theory. Advanced Nursing science, 23, 12-18.
  17. Mercer, T. R. (2004). Becoming a mother versus maternal role attainment. Journal of Nursing Scholarship, 36, 226-233. https://doi.org/10.1111/j.1547-5069.2004.04042.x
  18. Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population-based study. Peditrics, 119, 1040-e1046. https://doi.org/10.1542/peds.2007-0370
  19. Mu, P. F. (2006). Transition experience of parents caring of children with epilepsy: A phenomenological study, International Journal of Nursing Studies, 155, 1-9.
  20. Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2006). The health of caregiver for children with disabilities: Caregiver perspectives. Child: Care, Health & Development, 32, 180-187.
  21. Nelson, A. M. (2002). A Metasynthesis: Mothering other-than-normal children. Qualitative Health Research, 12, 515-530. https://doi.org/10.1177/104973202129120043
  22. Oh, W. O., & Park, E. S. (2007). Parenting experience of parents of children with ADHD: Approaching the normal. Journal of Korean Academy of Nursing, 37, 91-104.
  23. Preski, S., & Walker, L. O. (1997). Contribution of maternal identity and lifestyle to young children's adjustment. Research in Nursing & Health, 20, 107-117. https://doi.org/10.1002/(SICI)1098-240X(199704)20:2<107::AID-NUR3>3.0.CO;2-O
  24. Sawyer, L. M. (1999). Engaged mothering: The transition to motherhood for a group of African American women. Journal of Transcultural Nursing, 1, 14-21.
  25. Shin, H. J. (2004). Maternal transition in mothers with high risk newborns. Journal of Korean Academy of Nursing, 34, 243-251.
  26. Trapolini, T., McMahon, C. A., & Ungerer, J. A. (2007). The effect of maternal depression and marital adjustment on young children's internalizing and externalizing behavior problems. Child: Care, Health & Development, 33, 794-803. https://doi.org/10.1111/j.1365-2214.2007.00739.x
  27. Woolfson, L. (2004). Family well-being and disabled children: A psychosocial model of disability-related child behaviour problems. British Journal of Health Psychology, 9, 1-13.

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