Journal of Korean Academy of Nursing (대한간호학회지)

Korean Society of Nursing Science (한국간호과학회)
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The Life of Adolescent Patients with Complex Congenital Heart Disease

복잡 심기형을 가진 환자의 청소년기 삶

  • Lee, Sun-Hee (College of Nursing, Eulji University) ;
  • Kim, So-Sun (College of Nursing.The Nursing Policy Research Institute, Yonsei University)
  • 이선희 (을지대학교 간호대학) ;
  • 김소선 (연세대학교 간호대학.간호정책연구소)
  • Received : 2010.02.01
  • Accepted : 2010.06.09
  • Published : 2010.06.30
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Abstract

Purpose: In the present study, an analysis of the life of adolescents with complex congenital heart disease (CHD) was done using grounded theory. Consideration was given to the socio-cultural context of Korea. Methods: After approval from the institutional review board of Y hospital, 12 patients ranging in age from 14 to 35 were recruited. Data were gathered using in-depth interviews. Theoretical sampling was performed until the concepts were saturated. Results: The results confirmed the life of adolescents with complex CHD as a 'journey to finding uniqueness of oneself as a person with CHD'. The life consisted of 3 stages. In the crisis stage, participants had a feeling of threat to self-existence, and made an effort to be the same as others. In the self-recognition stage, participants who had sufficient role-performance built self-esteem while those who did not fell into self-accusation. In the self-establishment stage, participants who reached sufficiency in independence and knowledge planned the future, whereas those who did not conformed to the realities of life. Conclusion: The results of present study provide help in understanding the experiences of adolescents with CHD and provide a basis for developing nursing intervention strategies for these patients.

Keywords

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