Development and Evaluation of Community-based Respite Program for Family Caregivers of Elders with Dementia

치매노인 가족수발자를 위한 지역사회기반 휴식프로그램 개발 및 적용효과

  • Received : 2011.06.16
  • Accepted : 2011.07.13
  • Published : 2011.08.31

Abstract

Purpose: Purposes of this study were to develop a community-based respite program for family caregivers and to test the effects of the program. Methods: Focus group interviews were performed to extract meaning of respite care for family caregivers (13 participants) and a survey was done to identify respite needs of family caregivers (157 participants). The community-based respite program for family caregivers was developed based on results of the focus group interview and survey. The program was used with 41 participants (19 experimental and 22 control). Independent t-test and Mann-Whitney U-test were used to test differences between control and experimental groups for respite needs, burden of caregivers, subjective wellbeing, social support, fatigue and functional status of elders with dementia. Results: There were statistical differences in caregiver burden, subjective wellbeing, and social support after the program, but, none for respite needs, fatigue and functional status of elders with dementia. Conclusion: The results indicate that a respite program can be useful to decrease burden of caregivers and increase subjective wellbeing and perceived social support of family caregivers in community settings. Further intervention research is needed to increase the functional status of elders with dementia and decrease fatigue in caregivers.

Keywords

References

  1. Cambell, A. (1981). The sense of well-being in America. New York; Mcgraw-Hill.
  2. Cantor, M. H., & Brennan, M. (2000). Social care of the elderly: The effects of ethnicity, class, and culture. New York: Springer Publication.
  3. Cohen, J. (1988). Statistical power analysis for the behavioral sciences. New Jersey: Lawrence Erlbaum Associates.
  4. Colling, K. B. (2004). Caregiver interventions for passive behaviors in dementia: links to the NBD model. Aging & Mental Health, 8, 117-125. https://doi.org/10.1080/13607860410001649626
  5. Chun, K. I. (2008). The caregivers' burden, physical and mental health with senile dementia patients using day care center. Unpublished masters thesis, Sahmyook University, Seoul.
  6. Hahn D. W., & Pyo, S. Y. (2002). Predictions of subjective well-being, health perception and physical illness from emotional experiences in everyday life, The Korean Journal of Health Psychology, 7, 403-427.
  7. Jivanjee, P. (1995). Caregiving to family members with alzheimer's disease. New York and London: Garland Publishing, Inc.
  8. Kim, S. O. (2002). A study on families' supporting obligation toward senile-dementia patients, who use the day-timecare- center for old people. Unpublished masters thesis, Hanshin University, Osan.
  9. Kim, S. W., Kim, J. W., Shon, S. K., & Min, S. Y. (2007). The effectiveness of the group education program among the family caregivers of the demented elderly. Journal of Welfare for the Aged, 36, 7-34.
  10. Korean Neuropsychiatric Association (1997). Neropsychiatry, Seoul: Hana Medical Publication.
  11. Kwon, J. D. (1994). A study on the assessment of caregiver burden in caring for the demented elderly in Korea. Unpublished doctoral dissertation, Yonsei University, Seoul.
  12. Lee, E. H., Kim, S. H., & Youn, G. H. (2004). Effects of a cognitive-behavioral intervention program on reduction of care burden for the caregivers of the demented elderly patients. Korean Journal of Research in Gerontology, 13, 23-36.
  13. Lee, E. H., Youn, G. H., & Lee, C. S. (2006). The effects of cognitive-behavioral group intervention in reducing psychological distress in primary caregivers of persons with dementia, The Korean Journal of Clinical Psychology, 25, 341-360.
  14. Lee, H. J. (2006). The change of caregiver's burden for the dementia elderly by the use of daycare center. Unpublished doctoral dissertation, Chung-Ang University, Seoul.
  15. Lee, J. M. (2001). A study on the degree of satisfaction at the medical welfare facility use of family supporter for the old with dementia. Journal of Welfare for the Aged, 13, 145-172.
  16. Lee, S. J. (2009). Current status and development direction of long-term care insurance system for the elderly. Unpublished masters thesis, Cheongju University, Cheongju.
  17. Logsdon, R. G., McCurry, S. M., Moore, A. L., & Teri, L. (1997). Family and caregiver issue in the treatment of patients with Alzheimer's disease. Seminars in Clinical Neuropsychiatry, 2, 138-151.
  18. Ministry of Health and Welfare (2009). Dementia prevalence. Retrieved July 30, 2011, from http://stat.mw.go.kr/stat/data/cm_data_view.jsp?menu_code=MN01020502&cont_seq=11067
  19. Nicoll, M., Ashworth, M., McNally, L., & Newman, S. (2002). Satisfaction with respite care: A pilot study. Health and Social Care in the Community, 10, 479-484. https://doi.org/10.1046/j.1365-2524.2002.00391.x
  20. Oh, J. J. (1995). A study on development of health care services for the demented elderly in Korea. Unpublished doctoral dissertation, Seoul National University, Seoul.
  21. O'Reilly, P. (1988). Methodological issues in social support and social network research. Social Science & Medicine, 26, 863-873. https://doi.org/10.1016/0277-9536(88)90179-7
  22. Raivio, M., Eloniemi-Sulkava, U., Laakkonen, M. L., Saarenheino, M., Pietaila M., Tilvis, R., et al. (2007). How do officially organized services meet the needs of elderly caregivers and their spouses with alzheimer's disease? American Jounal of Alzheimer's Disease & Other Dementias, 22, 360-368. https://doi.org/10.1177/1533317507305178
  23. Seo, I. H., & Kong, G. S. (2004). Theory and practice of needs assessment. Paju: Nanam.
  24. Shanley, C. (2006). Developing more flexible approaches to respite for people living with dementia and their carers. American Journal of Alzheimer's Disease & Other Dementias, 21, 234-241. https://doi.org/10.1177/1533317506290446
  25. Song, M. R., Lee, Y. M., & Cheon, S. H. (2010). An analysis of the meaning of respite for family caregivers of elderly with dementia. Journal of Korean Academy of Nursing, 39. 482-492.
  26. Task Force Team of Public Support for Older Adults (2004). A study of the system of public support for older adults. (Administration Publication No. 11-1460000-002210-14). Seoul: Korea.
  27. Thompson, C. A., Spilsbury, K., Hall, J., Birks, Y., Barnes, C., & Adamson, J. (2007). Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics, 7, 18. Retrieved April 15, 2011, from http://www.biomedcentral.com/1471-2318/7/18 https://doi.org/10.1186/1471-2318-7-18
  28. Waite, A., Bebbington, P., Skelton-Robinson, M., & Orrell, M. (2004). Social factors and depression in carers of people with dementia. International Journal of Geriatric Psychiatry, 19, 582-587. https://doi.org/10.1002/gps.1136
  29. Yoo, E. J. (2002). The effect of group support program for the family caregivers of dementia patient. Unpublished doctoral dissertation, Seoul National University, Seoul.
  30. Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: a longitudinal study. The Gerontologist, 26, 260-266. https://doi.org/10.1093/geront/26.3.260