Journal of Hospice and Palliative Care

Korean Society for Hospice and Palliative Care (한국호스피스완화의료학회)
권호 표지

Effects of Death Education Program on Family Caregivers of Disabled Individuals

장애우 가족에게 적용한 죽음준비 교육의 효과

  • Received : 2010.09.28
  • Accepted : 2011.01.14
  • Published : 2011.03.01
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: The purpose of this study was to investigate the effects of Death Education Program which had been provided to family caregivers of disabled individuals. A single group pretest-posttest design was employed for this study, which was conducted at a community rehabilitation center located in Ulsan, South Korea. Methods: Death Education Program was conducted for 16 family caregivers of disabled individuals who agreed to participate in this study. A 2.5-hour session was conducted once a week for 10 weeks. To investigate the effects of the education program, structured questionnaires, which assessed the patients and their family member's conceptions on the meaning of life, and their resilience, burden, and attitude towards death, were administered before and after the program. Results: The subjects' conception of the meaning of life and resilience did not significantly change. The median scores for the burden of family caregivers declined, while those for the subjects' attitude towards death increased, after attending the education program. Conclusion: The findings showed that Death Education Program has an affirmative effect on the burden of family caregivers of disabled individuals and their attitude towards death.

목적: 장애우 가족에게 적용한 죽음준비 교육이 삶의 의미, 부담감, 극복력 및 죽음에 대한 태도에 미치는 효과를 파악하는 것이다. 방법: 대상자는 울산광역시에 소재한 장애인 종합복지관에 등록된 장애우 가족 16명이었다. 죽음준비 교육은 총 4부로 구성되었으며, 1부는 삶과 죽음의 신비와 소중함, 2부는 죽음의 의미와 평화로운 죽음을 위한 준비, 3부는 장례예식의 이해와 사별 후 적응, 4부는 유서 쓰기와 입관체험으로 진행되었다. 각 회기당 150분씩 주 1회, 총 10주간 실시하였으며, 회기별로 주제와 관련된 강의를 한 후 5~6명씩 3조로 나누어 토의하고 발표하도록 하였다. 수집된 자료는 SAS Window용(ver. 9.0)통계 프로그램을 이용하여 분석하였다. 결과: 죽음준비 교육 후 장애우 가족의 삶의 의미와 극복력은 증가하는 경향이 있었으며, 부담감은 감소하였고, 죽음에 대한 태도는 긍정적으로 변화하였다. 결론: 죽음준비 교육이 장애우 가족에게 삶의 의미와 죽음에 대한 태도를 긍정적으로 변화시키고 부담감을 감소시켰으므로 더 많은 장애우 가족들에게 확대 적용될 수 있기를 기대한다. 또한 죽음준비란 죽음의 순간을 준비하는 것은 물론 자신의 삶에 대한 점검이며 의미있는 삶을 사는 과정이므로 건강 프로그램(well-being)과 더불어 죽음준비 교육(well-dying)이 이루어지기를 제언한다.

Keywords

References

  1. Jang SH. A study on the adult education for death preparation [dissertation]. Seoul: Hanyang Univ.; 2009. Korean.
  2. Kim YS. A study about the requirement different of death-preparation- education pursuant to distinction of sex [dissertation]. Seoul: Ewha Womans Univ.; 2007. Korean.
  3. Jo KH, Lee HJ, Lee YJ. Development and application of online education on death. J Korean Acad Nurs 2007;37(4):442-52. https://doi.org/10.4040/jkan.2007.37.4.442
  4. Kim SN, Choi SO, Lee JJ, Sin KI. Effects of death education program on attitude to death and meaning in life among university students. J Korean Society Health Educ Promot 2005;22(2):141-53.
  5. Kubler-Ross E. On death and dying. New York:Macmillan Co.;1969.
  6. Ryu HO. Death anxiety among the middle aged and the elderly [dissertation]. Seoul: Sungshin Women's Univ.; 2004. Korean.
  7. Suh WK. On conditions of volunteering at hospice and the volunteers' death anxiety: centered on Daegu area [dissertation]. Gyeongsan: Yeungnam Univ.; 2007. Korean.
  8. Sogyal R. The Tibetan book of living and dying. Soeul:Minumsa Publishing Group;1999.
  9. Yang KS. A study on the program development of death education: centering on institute of continuing education [dissertation]. Seoul: Yonsei Univ.; 2009. Korean.
  10. Yoon MO. Effect of a death preparing education program on death anxiety and meaning of life in volunteers. Korean J Hosp Palliat Care 2009;12(4):199-208.
  11. Smith-Cumberland T. The evaluation of two death education programs for EMTs using the theory of planned behavior. Death Stud 2006;30(7):637-47. https://doi.org/10.1080/07481180600776028
  12. Park JH. An analysis of the effects of the death preparation program [dissertation]. Daejeon: Mokwon Univ.; 2007. Korean.
  13. Kim EH, Lee E, Effects of a death education program on life satisfaction and attitude toward death in college students. J Korean Acad Nurs 2009;39(1):1-9. https://doi.org/10.4040/jkan.2009.39.1.1
  14. Shin SJ. The effect of a death preparation education program on attitude for death and suicide of university students [dissertation]. Busan: Catholic Univ. of Busan; 2004.
  15. Cho HJ, Kim ES. The effect of the death education program on the death anxiety and attitudes toward nursing care of the dying patients of nursing student. Korean J Hosp Palliat Care 2005; 8(2):163-72.
  16. Lee SM. A qualitative study on experiences of mothers bring up a child with double disabilities, mentally and intellectually [dissertation]. Seoul: Soongsil Univ.; 2008. Korean.
  17. Seo NS. A study on permanency planning of children with mental retardation: for the parents of Seoul and Kyunggi-do area [dissertation]. Anyang: Sungkyul Univ.; 2009. Korean.
  18. Han SI. A study on overcoming the crisis on the parents of the disabled children [dissertation]. Osan: Hanshin Univ.; 2003. Korean.
  19. Yu BS. A comparative study on Self-Esteem and Meaning level of life in mothers of disabled children [dissertation]. Gongju: Kongju National Univ.; 2006. Korean.
  20. Eker L, Tuzun EH. An evaluation of quality of life of mothers of children with cerebral palsy. Disabil Rehabil 2004;26(23):1354-9. https://doi.org/10.1080/09638280400000187
  21. Nam HS. Analysis on adults' attitude toward death and the need for death preparation education [dissertation]. Seoul: Chung-Ang Univ.; 2000. Korean.
  22. Won DR, Kim KH, Kwon SJ. Validation of the Korean version of meaning in life questionnaire. Korean J Health Psychol 2005; 10(2):211-25. https://doi.org/10.1177/1359105305049769
  23. Song YS. Determinants of resilience of the physically disabled at home [dissertation]. Busan: Kosin Univ.; 2004. Korean.
  24. Montgomery RJV, Gonyea JG, Hooyman NR. Caregiving and the experience of subjective and objective burden. Fam Relat 1985;34:19-26. https://doi.org/10.2307/583753
  25. Choi YS. The burden and social support of family caregivers of mentally ill patient [dissertation]. Seoul: Ewha Womans Univ.; 1997. Korean.
  26. Park SC. A study on the death orientation of hospice volunteers. J Korean Acad Nurs 1992;22(1):68-80.
  27. Lee EK. A study on factors affecting cancer patients. J Korean Acad Soc Nurs Edu 2007;13(1):52-8.
  28. Steinhardt M, Dolbier C. Evaluation of resilience intervention to enhance coping strategies and protective factors and decrease symptomatology. J Am Coll Health 2008;56(4):445-53. https://doi.org/10.3200/JACH.56.44.445-454
  29. Baek KW. A study about resilience in children with chronic illness and family resilience [dissertation]. Seoul: Chung-Ang Univ.; 2005. Korean.
  30. Laskar AR, Gupta VK, Kumar D, Sharma N, Singh MM. Psychosocial effect and economic burden on parents of children with locomotor disability. Indian J Pediatr 2010;77(5):529-33. https://doi.org/10.1007/s12098-010-0064-7
  31. Mackey S, Goddard LD. The experience of health and wellness in mothers of young children with intellectual disabilities. J Intellect Disabil 2006;10(4):305-15. https://doi.org/10.1177/1744629506070055
  32. Choi JS. A study on the burden and social supports of family cargivers of mentally ill patients [dissertation]. Gongju: Kongju National Univ.; 2003.
  33. Chung KS, Lee SE, Cho KM, Jung YM. A study on mental health status, burden and quality of life of mothers with handicapped children. J Korean Acad Psychiatr Ment Health Nurs 2004;13(3):282-90.